By Maja, 1p36 deletion syndrome, Croatia, February 28, 2021
My daughter Mia was born with congenital cytomegalovirus infection and from birt we new she will face a lot of obstacles in her life. We were told she will never walk, talk etc. But she was little warrior from the start. She started to crawl when she was 2 years old, walk before she turned 4 years. In that time our neurologist said that if it was only cCMV she should be talking so she wanted to make genetic testing. Mia was 5,5 years old when we found she has 1p36 microdeletion syndrome. Mia can say only few words but she is so good in using her communication device so sometimes I almost forget that she cannot talk. I still hope that maybe someday she will really talk but for now I am happy because I know she can say what she wants.