Rare Disease Day 2024 raises awareness for the community of over 300 million people worldwide living with a rare disease and their families. We reached… Continue reading Rare Disease Day 2024 posters
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With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start… Continue reading Join the Countdown: Rare Disease Day 2024 Starts Now
Driving Awareness by amplifying Young voices in the Rare Disease community We organised this Rare Disease Day 2024 webinar to explore effective ways to reach… Continue reading Rare Disease Day webinars
Thank you for your interest in raising awareness for Rare Disease Day! Taking place every year on the last day of February, Rare Disease Day… Continue reading Join Rare Disease Day as a company
We are a student-led/run club on Cal Poly State University San Luis Obispo’s campus planning an event on 2/28, from 11 am to 1 pm.… Continue reading Cal Poly Genetic Counseling Student Interest Group
Today is Rare Disease Day! We are inviting everyone to share their colours and raise awareness for the 300 million people living with a rare… Continue reading Press Release: Mark Rare Disease Day 2023
As someone who lives with a number of rare conditions, including Nail Patella Syndrome, Idiopathic Intracranial Hypertension, Nervus Intermedius Neuralgia, Glossopharyngeal Neuralgia, and Trigeminal Neuralgia,… Continue reading My journey with Nail Patella Syndrome and rare neurological conditions
We fly like butterflies – Let’s sting like bees Rare Disease Day is just around the corner! As February 28 approaches, I have more and… Continue reading My rare world
My name is Becky, I live in the UK, am married and my wonderful husband Carl and I have three children, Isabella (age four) Joshua… Continue reading Rare Role Model