Today, 20 November 2024, marks the official launch of the Rare Disease Day 2025 global campaign, beginning the 100-day countdown to 28 February 2025. This… Continue reading Launch of the Rare Disease Day 2025 Campaign
Today, 20 November 2024, marks the official launch of the Rare Disease Day 2025 global campaign, beginning the 100-day countdown to 28 February 2025. This… Continue reading Launch of the Rare Disease Day 2025 Campaign
The Association of Patients with Multiple Myeloma, Myelodysplastic Syndrome, and Other Rare Blood Diseases in Bosnia and Herzegovina plays a pivotal role in supporting individuals… Continue reading Association of patients with multiple myeloma, myelodysplastic syndrome and other rare blood diseases in Bosnia and Herzegovina (Myeloma in BiH)
We are connecting with multiple businesses in different cities in our state to light them up. Doing a rare disease reading at a library. visititing… Continue reading Wisconsin Rare Disease Alliance
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure. For Rare… Continue reading Wake Up Narcolepsy (WUN)
Silverlight Digital is a media agency in the United States that specializes in healthcare and pharmaceutical advertising. We support Rare Disease Day to increase awareness… Continue reading Silverlight Digital
RARAS is a comprehensive initiative in Brazil to address the challenges of rare diseases. RARAS is a crucial network for collaboration among various stakeholders, including… Continue reading RARAS – BRAZILIAN RARE DISEASE NETWORK
Our association is dedicated to raising awareness of MECP2 duplication syndrome (MDS) and uniting various disciplines and families to accelerate breakthroughs in research and care.… Continue reading DupMECP2 Lasst uns MDS heilen