Festival du Voyageur had made snow sculptures for their festival and they made a snow sculpture of hands which looks like the Rare Disease Hands.… Continue reading Lighting up Winnipeg Manitoba For Rare Disease Day
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Everyone can participate in the Global Chain of Lights and Share Your Colours! In an effort of global solidarity, you are invited to light or… Continue reading #LightUpForRare
We are a school group spreading awareness of Rare Disease Day for our Global Scholars Service Project. We hosted an awareness week at Craig High… Continue reading Craig High School Global Scholars “Light-Up Committee”
Rare Disease Day 2025: “More Than You Can Imagine” approaches, and the Malaysian Rare Disorders Society (MRDS) is amplifying awareness!… Continue reading Rare Disease Media Week – Kempen Kesedaran Penyakit Jarang Jumpa
I’d like to tell you my story. Progressive Supranuclear Palsy (PSP) is a very rare terminal brain disease that slowly kills off the stem cells… Continue reading The fight against PSP Progressive Supranuclear Palsy
Every experience in life serves a purpose. Living with Factor V Deficiency (Para-hemophilia), a rare bleeding disorder, has shaped my journey in ways I never… Continue reading Finding Strength in Vulnerability – A Rare Disease Day Reflection
Our mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive… Continue reading 1p36 Deletion Support & Awareness
A Global Call to Action for the 300 Million People Living with a Rare Disease 28 February 2025 – The 18th edition of Rare Disease… Continue reading Press Release: Rare Disease Day 2025
