Festival du Voyageur had made snow sculptures for their festival and they made a snow sculpture of hands which looks like the Rare Disease Hands.… Continue reading Lighting up Winnipeg Manitoba For Rare Disease Day
Everyone can participate in the Global Chain of Lights and Share Your Colours! In an effort of global solidarity, you are invited to light or… Continue reading #LightUpForRare
Today, 20 November 2024, marks the official launch of the Rare Disease Day 2025 global campaign, beginning the 100-day countdown to 28 February 2025. This… Continue reading Launch of the Rare Disease Day 2025 Campaign
The Association of Patients with Multiple Myeloma, Myelodysplastic Syndrome, and Other Rare Blood Diseases in Bosnia and Herzegovina plays a pivotal role in supporting individuals… Continue reading Association of patients with multiple myeloma, myelodysplastic syndrome and other rare blood diseases in Bosnia and Herzegovina (Myeloma in BiH)
We are connecting with multiple businesses in different cities in our state to light them up. Doing a rare disease reading at a library. visititing… Continue reading Wisconsin Rare Disease Alliance
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure. For Rare… Continue reading Wake Up Narcolepsy (WUN)