Results for "light up for rare"

Hello, my name is Ethan , I would like to share with you a little about myself and the important quest I have joined to… Continue reading Ethan’s Story

I was asked to write a short description of my beautiful daughter Christina – Vassiliki , to integrate the personal stories of emotional content ,… Continue reading Η ζωή μου με έναν άγγελο -Christina, Rett syndrome

I have Stiff-Person Syndrome (SPS), a rare neurological disorder affecting about one in a million people. In 2006, I discovered I had a broken back,… Continue reading Kicking SPS – Fight On !!!