Mexico first joined in Rare Disease Day celebrations in 2010. The awareness campaigns have been aimed at the general public, as well as at leaders… Continue reading Mexico
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The beginning of February 2020, when Italian RD Community was already ready to celebrate the RDD with hundreds of events, brought in Italy the nCo… Continue reading Italy
Egypt first joined the Rare Disease Day celebrations in 2014. Previous highlights of the day include a parade in Hurghada with decorated cars and folklore… Continue reading Egypt
Brazil first participated in Rare Disease Day in 2010. Over the years, celebrations have extended throughout the entire week leading up to Rare Disease Day… Continue reading Brazil
Hello everyone! My name is Tristan from the United States and I am living with Sickle cell anemia. My passion in life is fashion, design,… Continue reading Tristan’s story
Like any rare condition, living with nethertons syndrome is a daily battle and the last three months has reminded me that I’m not in control… Continue reading I won’t be beaten!
my name is Daniel. I was diagnosed with Pulmonary Hypertension in 2007. It wasn’t until 2010 that I found out that my youngest half-brother was… Continue reading Ultimate ph Warrior
Hi, I’m Asher. I’m now 7 3/4 months old! When I was 6 weeks Doctors told my parents I was about to die, and the… Continue reading Overcoming everything
For the first 25 odd years of my life I struggled with brain fog, pins and needles, vertigo, insomnia, depression, anxiety and a general sense… Continue reading Turns out there was something wrong