Still not sure visual snow syndrome is a rare disease like people talk about. Feels like being near sighted and taking off your glasses. Like… Continue reading Visual Snow
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Swathi was born healthy on the 12th of April 2017. At the age of 6 months, upon prolonged boughts of pneumonia, a series of tests led to the shocking… Continue reading Malaysia Pompe Warrior
From Challenging Phases To Facing Challenges Story of Zoyeb from Chennai / India – ATAXIA Written by his father – Iftikhar ——————————————————————————————————————————- Zoyeb , who… Continue reading From Challenging Phases to Facing Challenges
I would like to share my miracle story with others to help inspire them and give them hope it’s a way of me paying it… Continue reading My miracle journey
At 10 weeks pregnant, I can still remember the look on my ultrasound technician’s face. “They told you you were having a baby? ” Well,… Continue reading The Red and White Twins
After over 13 years of living with my ITP I can reflect upon plenty of incidents during that time. It has certainly been eventful, to say the… Continue reading Always Tired and Bruising Like a Peach
Here I am again on the road. I spend more than half of my life in cars driving to and from Hospitals, Clinics, Doctor’s Offices… Continue reading On the Road AGAIN!!
I have spent the majority of my adult life SICK. When I say sick I am not speaking about a common cold or even a… Continue reading The Skin I live in
Hello this is Reyna! She is 3 years old. Last year in May the day after her 3rd birthday, she was diagnosed with a rare fatal… Continue reading Reynas Fight with MPSIIIA