It is with a heavy heart that I share the story of my beloved mother, Samia, a woman of grace and strength who touched our… Continue reading Honoring the Unforgettable: A Tribute to My Beautiful Mother, Samia
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I could lie and say Gideon started his life as an easy baby, but I will not. Gideon started his life with a BANG. He… Continue reading Gideon, The Little Warrior
We knew something wasn’t quite right after having 10 pregnancies and 8 births (one born sleeping). You kind of have the upper hand in knowing… Continue reading Whitematter Warrior Dude Sutton
My name is Sachin and I’m a 37-year-old guy who has a rare genetic disease known as Duchenne muscular dystrophy (DMD), which primarily affects males,… Continue reading Sachin: Resilience in the face of Duchenne Muscular Dystrophy
Hey everyone I thought I would make a page for mollie to make it easier to follow my beautiful girl on this journey she now… Continue reading Mollie ARPKD Journey
A misdiagnosis of chronic fatigue syndrome in young adulthood bought me a ticket to condescendence, humiliation and neglect. The search for answers for my many… Continue reading Recognise ME
We had our son Hector on the 19th May 2023, he was a seemingly healthy baby and we couldn’t have been more smitten with him.… Continue reading Hector’s triumph
Watching the Green Bay Packers on TV is a weekly ritual in my home. But a family tradition was interrupted—and my life after 24 years… Continue reading Insights From Moyamoya
Sophia Rose was born in 2007 to proud parents Rachel and Gary in Laguna Beach, CA, USA. We did not receive the diagnosis of her… Continue reading A Cure for Sophia and Friends