Global MedCon (GMC) is a global healthcare consultancy specializing in genetic testing and medical diagnostics. We work with leading laboratories and healthcare providers to offer… Continue reading Global medcon
Results for "light up for rare"
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Revista Raros is a digital publication dedicated to giving a voice to the rare disease community. With a light and accessible approach, the magazine features… Continue reading Revista Raros
Since our foundation’s establishment in 2013 by parents who recognized the challenges faced by one of the most marginalized and underserved groups in society, we… Continue reading Source Foundation
I was over the moon when I found out I was pregnant! I had a prior miscarriage, but luckily had a relatively normal pregnancy the… Continue reading John’s Journey
Cure HSPB8 is a U.S.-based patient advocacy organization dedicated to addressing the challenges of HSPB8 Myopathy — an ultrarare, adult-onset muscle-wasting condition. As the only… Continue reading Cure HSPB8
We’re a purpose-led CRO committed to transforming clinical development by putting the patient at the center of research. With three decades of specialization in Goal… Continue reading Ardea Outcomes
My son Emilio (my first born) was born on 6 July 2023. His little eyes didn’t open at all for the first few weeks of… Continue reading My special 1 in 50,000 baby
IDFA is a national not-for-profit and leading peak body offering education, advocacy and awareness for Australians living with primary or secondary immunodeficiencies. In conjunction with… Continue reading Immune Deficiencies Foundation Australia
Nerve Connection Foundation was established in 2021 to address a need for a significant uptick in funding for research into devastating, fatal neurodegenerative diseases. Motor… Continue reading Nerve Connection Foundation Limited