We are excited to announce our Rare Disease Day webinar series, which started on Wednesday 21st October. In these webinars, a range of topics are covered… Continue reading Rare Disease Day’s new webinar series!
Results for "light up for rare"
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Hi, I’m Melissa Quekel 23 years old and I live in the Netherlands with my fiance Bart. When I was 1 year old, I was… Continue reading Living with a rare metabolic disease
Art events are powerful tools to raise awareness for people living with a rare disease. This year Rare Disease Day saw a wide variety of… Continue reading The power of art – painting a brighter future for people living with a rare disease
A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and monuments lighting up to raise awareness. From well-known… Continue reading World landmarks shining a light for Rare Disease Day – individual and local efforts send a global message!
Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each year since it was first launched in 2008.… Continue reading Thank you for making Rare Disease Day 2020 a success!
Each year I “celebrate” Rare Disease Day which was February 29th. Celebrate is a weird word to describe it, but it a day that I… Continue reading The invisible group
Rare Disease Day is today, 29 February as it is a leap year. The rarest day of the year dedicated to raising awareness for people living with a rare… Continue reading Today is Rare Disease Day 2020
My name is Michael and I am a multi-zebra. This is someone who suffers from mutliple rare medical conditions. Specifically, I have four (4) rare conditions with… Continue reading Surviving with multiple rare conditions
Hi my fellow Zebras/Unicorns! A few years ago I was diagnosed with Guillian Barré Syndrome, and within a few weeks of being in the hospital… Continue reading RareXEight