Growing up in a family impacted by Huntington’s Disease – a rare and incurable genetic disorder, I feel compelled to share my exceptional life experiences… Continue reading Love Isn’t Rare
Results for "huntington"
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I have Huntington disease
Maddox is a 14 yo boy who was diagnosed with Juvenile Huntingtons Disease 4 years ago. He suffer from Epilepsy as part of the disease… Continue reading Maddox
We will release an expert opinion article to raise awareness of the new Rare Diseases Framework particularly in relation to Huntington’s Disease.
Me, part 1 I don’t know about you but for me, I connect with people most when I know their story, and when I share… Continue reading My HD journey
I have been a carer for my father for around ten years ! He suffers from Huntington’s DISEASE which is a rare genetic disorder. Yes… Continue reading Being a carer and at risk of a rare disease.
My story is about my husband, John, and his three sisters, Lora, Marcia and Cindy. The siblings each had a 50/50 chance of inheriting the… Continue reading The Four Marin Siblings