Rare Disease Day 2024 posters
Rare Disease Day 2024 raises awareness for the community of over 300 million people worldwide living with a rare disease and their families.
We reached out to 80 people who submitted a clip for our official video, to invite them to send us a picture of themselves to be featured on our posters. Indeed this year, we decided to produce two posters to best represent the diverse backgrounds of our global rare disease community and to portray our two calls to action.
They are translated and disseminated worldwide by the 72 National Alliance patient organisation partners of the Rare Disease Day campaign. They are essential tools in raising awareness and inviting everyone to both Share their Colours and Light Up for Rare on 29 February 2024.
Download them now, and be sure to share them on your social media using the hashtag #RareDiseaseDay and print them for your Rare Disease Day events!
From left to right and top to bottom
- Erica, a survivor of arteriovenous malformation from the US, dedicates herself to raising awareness about rare diseases. She also participates in pageants to further advocate for this cause.
- Lachy, one of Rare Voices Australia’s Ambassadors for 2023, was diagnosed with Juvenile Dermatomyositis (JDM) at the age of 3. He is a gifted guitarist and the composer of the song ‘It’s Not Always Fair to Be Rare’, reflecting his journey.
- Zainab, hailing from Bahrain and living with Ichthyosis vulgaris as well as another genetic condition, is determined to inspire others to never give up hope. Discover more about her story.
- Chapman, a young and talented blind pianist from Hong Kong, faces life with an undiagnosed genetic disease. Learn more about his journey.
- Shelsea, from Puerto Rico, battles Megacystis Microcolon Intestinal Hypoperistalsis Syndrome with incredible courage.
- Evelyn, from Austria, lived with Osteogenesis Imperfecta and used Rare Disease Day as a platform to educate others about rare diseases and the importance of research and support. Evelyn passed away earlier this year, but her legacy will live on.
From left to right and top to bottom
- Rose: from Ivory Coast, lives with GNE Myopathy and is the founder and executive director of the national alliance ‘Aux pas du coeur’. Discover more about her impactful work.
- Darren and Elly, a father-daughter duo from the United Kingdom, share a close bond through Elly’s journey with 22q11.2 Distal Deletion Syndrome. For Rare Disease Day, Darren highlights the significance of awareness and the virtue of patience in navigating their challenges.
- Lauren, a Canadian who champions the cause of invisible disabilities, lives with Central Core Disease. Her role as a speaker and ambassador brings valuable insights into her condition. Learn more about her advocacy.
- Logan, a young boy from the United States living with Loeys-Dietz Syndrome type 2, inspires others to embrace their true selves. Find out more about his encouraging message.
- Georgina, from Peru, faces Hemoglobinuria ParoxÃstica Nocturna (HPN) and underscores the importance of Rare Disease Day in bringing visibility to the rare disease community.
- Sai,a certified happiness coach from India living with Osteogenesis Imperfecta, shares his journey towards finding joy amidst challenges. Learn more about his inspiring approach to life.