Rare Disease Day 2025

Rare Disease Day 2025, observed on 28 February, marks the 18th annual global event raising awareness for over 300 million people affected by rare diseases. This year’s theme, “More Than You Can Imagine,” highlights the daily challenges faced by individuals with rare conditions and the need for stronger healthcare and social support systems.

The official campaign launched on 20 November 2024, kicking off a 100-day countdown focused on improving accessibility for those with rare diseases. Awareness efforts have been amplified by global media coverage, large-scale events, and landmark illuminations worldwide. With participation from over 100 countries, Rare Disease Day 2025 continues to be a crucial platform advocating for early diagnosis, better treatments, and stronger policy support for rare disease patients.

Media Coverage

The event garnered extensive media attention, with coverage from prominent outlets including Yahoo.com, Daily Mail (UK), Times of India (India), Independent (UK), CTV News (Canada), Virgilio (Italy), La Nazione (Italy), Presseportal (Germany), RTE (Ireland), DH Les Sports+ (Belgium), and Euractiv (EU). This widespread reporting underscored the global commitment to raising awareness and fostering support for those living with rare diseases.

Social Media highlight

In the month leading up to February 28, Rare Disease Day experienced a significant surge in online engagement. Mentions escalated to 10.3k, and the campaign’s reach expanded to 15.9 million.

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