Festival du Voyageur had made snow sculptures for their festival and they made a snow sculpture of hands which looks like the Rare Disease Hands.… Continue reading Lighting up Winnipeg Manitoba For Rare Disease Day
Festival du Voyageur had made snow sculptures for their festival and they made a snow sculpture of hands which looks like the Rare Disease Hands.… Continue reading Lighting up Winnipeg Manitoba For Rare Disease Day
Everyone can participate in the Global Chain of Lights and Share Your Colours! In an effort of global solidarity, you are invited to light or… Continue reading #LightUpForRare
We are connecting with multiple businesses in different cities in our state to light them up. Doing a rare disease reading at a library. visititing… Continue reading Wisconsin Rare Disease Alliance
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure. For Rare… Continue reading Wake Up Narcolepsy (WUN)
Silverlight Digital is a media agency in the United States that specializes in healthcare and pharmaceutical advertising. We support Rare Disease Day to increase awareness… Continue reading Silverlight Digital
RARAS is a comprehensive initiative in Brazil to address the challenges of rare diseases. RARAS is a crucial network for collaboration among various stakeholders, including… Continue reading RARAS – BRAZILIAN RARE DISEASE NETWORK
Our association is dedicated to raising awareness of MECP2 duplication syndrome (MDS) and uniting various disciplines and families to accelerate breakthroughs in research and care.… Continue reading DupMECP2 Lasst uns MDS heilen
The Battle of the Rare One word to describe people living with rare diseases or illnesses is “dismissed”. “We are at war with an invisible… Continue reading The Battle of the Rare
“Happiness can found in the darkest times if one only remembers to turn on the light” so Dumbledore says. When I got diagnosed with rare… Continue reading You choose the light