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The World of Rare Diseases

Country Organiser
Elina Miaouli

THE WORLD OF RARE DISEASES – SPANIOS.GR

Other
ELINA MIAOULI

The WWOX Foundation

Patient Group
Stephen Pratt

The Yaya Foundation for 4h Leukodystrophy

Patient Group
Christina Butterworth

Thélema – Psicoterapia e Riabilitazione APS

Health Professional
Antonella Esposito

Thrive with Pyruvate Kinase Deficiency

Patient Group
Tamara Schryver

Timothy Syndrome Alliance (TSA)

Patient Group
Sophie Muir

TOFS

Patient Organisation
Peter Browne

Together Fighting Sarcoma Association Bulgaria

Patient Organisation
Lidiya Vitanova
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