Friends Archive - Page 217 of 235 - Rare Disease Day 2025

We use cookies to optimise our website and our service.

Functional Always active

The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.

Preferences

The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.

Statistics

The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.

Marketing

The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.

Our friends

Check out how these 1,400 amazing organisations are raising awareness!

The Progeria Research Foundation

Rare Diseases South Africa

The Rare Disorder Podcast

The Rose F. Kennedy IDDRC

The SPATA Foundation

The Superhero Project

The Swedish National Agency for Rare Diseases (NFSD – Nationella Funktionen Sällsynta Diagnoser)

The UK Mastocytosis Support Group

The Whitworth Group

Want to become a friend?

Our friends

Check out how these 1,400 amazing organisations are raising awareness!

Want to become a friend?

Share your colours

Meet our heroes

Become our friend

Find an event near you

Download materials

Sign me up for updates!