Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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The Coalition of Rare Diseases – Israel

National Alliance
Orly Dror - Azuriel

The Cute Syndrome Foundation

Patient Organisation
Megan Varner

The David J. Kabakow Foundation

Other
Robin Kabakow

The Dinosaur Trust

EURORDIS Member
Tanja Flintoff

The E.WE Foundation

Other
Sarita Edwards

The Ectodermal Dysplasia Society

Patient Group
Danielle Gue

The european fontan association

Patient Group
Brendan Colpaert

The FamilieSCN2A Foundation

Patient Organisation
Jennifer Burke

The Firefly Fund

Country Organiser
Pam
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