Our friends

Check out how these 1,400 amazing organisations are raising awareness!

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Stickler Syndrome Italy

Non-governmental organisation (NGO)
Irene Panizzolo

Stiff Person Syndrome Association

Patient Group
Michael D West

Stiff Person Syndrome Support Group

Patient Group
Liz Blows

Stiftung Joël Kinderspitex, Schweiz

Health Professional
Simon Fuchser

Stiftung Lichterzellen

Researchers

Student Line for Rare Diseases

Health Professional
Student Line for Rare Diseases

STXBP1 Foundation

Patient Organisation
Jackie Steinberg

Sultan Bin Abdulaziz Humanitarian City

Other

Sultan Qaboos University Hospital

Educational institution
Dr Hussain Alsaffar
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