News

51 Rare Disease Day news
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We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took part. This year, Rare Disease Day was celebrated by patient groups, policy-mak...
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Today on Rare Disease Day 2019 the worldwide rare disease community is joining together to raise awareness of rare diseases by holding events, conferences and fundraisers. Thousands of Rare Disease Da...
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Rare Disease Day 2019 puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of Filip, Karlo and Lorena and their exper...
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Watch the #ShowYourRare 2019 video to get inspired to paint your face and Show Your Rare during the month of February for Rare Disease Day 2019.It’s simple to take part! Paint your face using br...
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Following great demand from across the community, Rare Disease Day has launched an online shop full of official products to take your day to the next level.With the 28th of February just around the co...
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Karlo, 30 years old, and his younger sister are the stars of one of the upcoming Rare Disease Day 2019 videos.He is from Zagreb, Croatia and is living with the rare disease neurofibromatosis type 1. T...
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Lorena from Madrid, Spain is the star of one of the Rare Disease Day 2019 patient testimonial videos (coming soon!). She lives with Phelan-McDermid syndrome, a disease linked to chromosome 22q13 that ...
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Download the official Rare Disease Day 2019 poster to display at your events, workplace or home and raise awareness of the impact of rare diseases in your community. The Rare Disease Day poster is ava...
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Filip, aged 8, is the youngest person to feature in the Rare Disease Day 2019 testimonial videos.He is from Bucharest, Romania and lives with the rare disease achondroplasia, which affects 1-9 in 100 ...
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The countdown to Rare Disease Day 2019 has officially begun. The 12th edition of Rare Disease Day will take place on 28 February 2019. The day will see members of the rare disease community from patie...
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