News

62 Rare Disease Day news
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Art events are powerful tools to raise awareness for people living with a rare disease. This year Rare Disease Day saw a wide variety of art events around the world engaging all members of the communi...
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A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and monuments lighting up to raise awareness. From well-known landmarks such as the Colosseum and the wor...
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Saturday 29 February was the 13th edition of Rare Disease Day. The campaign continues to grow each year since it was first launched in 2008. Thousands of events were organised over 100 countries and r...
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Today as thousands of events place take place around the world to mark the occasion of Rare Disease Day 2020, we share a sincere message of solidarity with the rare disease community who have cancelle...
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Rare Disease Day is today, 29 February as it is a leap year. The rarest day of the year dedicated to raising awareness for people living with a rare disease. The rare disease community and its support...
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Lubin, aged 12, is from Juvisy, France and is living with spinal muscular atrophy (SMA) which affects 1-9 in 100,000 people. Diagnostic Journey Around the age of one, Lubin’s parents noticed that ...
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Kin Ping  is living with retinitis pigmentosa. He was diagnosed as a teen after 10 years of visiting dozens of ophthalmologists. Retinitis pigmentosa symptoms include difficulty seeing at night and th...
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Download the official Rare Disease Day 2020 poster to display at your events, workplace or home and to share the message that Rare is many worldwide, rare is strong every day, rare is proud everywhere...
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Gauthier, aged 4, and his mother Eloise feature on the Rare Disease Day 2020 official poster. He is from Charleroi, Belgium and lives with the rare disease sickle cell anaemia, which affects 1-5 in 10...
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The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day will take place on 29 of February 2020, the rarest day of the year. The campaign is open to everyone to get involved ...
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