National Alliances and Partners

65 National Alliances and Partners
The association of rare diseases is a non-governamental organization which organizes patients and active people in the f...
Phone: +355693571311
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Pro Rare Austria is the national alliance for rare diseases and was founded in the end of 2011 as a not-for-profit assoc...
Phone: +436644569737
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The Brazilian Association of Rare Diseases - FEBER -  is a non governmental, non profit organization, founded in the cit...
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The Bulgarian National Alliance for People with Rare Diseases, NAPRD, was founded in 2007 and incorporates 49 rare disea...
Phone: +359888323748
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Chinese Organization for Rare Disorders (CORD), founded by China-Dolls Center for Rare Disorders in June 2013, is a non-...
Phone: +861083545711
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Rare Diseases Croatia is the umbrella organization that gathers 29 other non-profit organizations acting on behalf of pa...
Phone: +38512441393
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What is the Rare Diseases Czech Republic mission?The Rare Diseases Czech Republic (ČAVO) was founded in March 2012. ČAVO...
Phone: +420774151290
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Our organization, Georgian Foundation for Genetic and Rare Diseases (GeRaD), was formed in 2009. GeRaD represents a grou...
Phone: +995599294439
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Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization in Ghana leading advocacy, serving ...
Phone: +233552716011
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The Indian Organization for Rare Diseases was incorporated as a not-for-profit organization in USA & India.  It is a...
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Rare Diseases Foundation of Iran is a non-profit institution with national and international sphere of operation. This f...
Phone: +982166572937
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UNIAMO F.I.M.R.onlus, the Italian Federation of Rare Disease associations,is committed to protect the rights and improve...
Phone: +39064404773
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JPA
Japan Patient Association (JPA) is the official Rare Disease Day partner in Japan. JPA is a central organization of pati...
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Rare Disorders Kenya is a community of people with rare diseases and all who support them. We provide a united voice for...
Phone: +254701025753
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Latvian Alliance for Rare Diseases is national umbrella organization of rare disease patient organizations in Latvia. Al...
Phone: +37129157967
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ALAN – Maladies Rares Luxembourg is a non-profit association founded in 1998 and declared of public utility in 2000. It ...
Phone: +3522661121
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The Marigold Foundation started a two year long campaign on the need to set up a national alliance on rare diseases. Thr...
Phone: +35699912373
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Nacionalna organizacija za rijetke bolesti Crne Gore je nevladino socijalno-humanitarno udruženje, osnovano kao dobrovol...
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Rare Disorders New Zealand, provides New Zealand's central starting point for information about rare diseases. RDNZ main...
Phone: +6443851119
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About FFOThe Norwegian Federation of Organizations of Disabled People (FFO) is an umbrella organization with more than 7...
Phone: +4781556940
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The Romanian National Alliance for Rare Diseases - RONARD - was established in 2007 through a project initiated by the R...
Phone: +40260610033
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Slovak RD Alliance is currently a network of 18 patient associations in Slovak Republic which supports and connects pati...
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In Sweden, a disease is defined as “rare” when it affects less than 500 in one million (or 5 of 10 000). Rare diseases S...
Phone: +46727221834
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NGO "Rare Diseases of Ukraine" was founded in 2015; however, its recognition was a huge step by all patients organisatio...
Phone: +380503640673
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Rare Disease UK is the national campaign for people with rare diseases and all who support them.Rare Disease UK provides...
Phone: +442078310883
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The Argentina Federation for Rare Diseases - FADEPOF - unites non-profit organizations and people and families living wi...
Phone: +549113901221
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Rare Voices Australia (RVA) is Australia’s peak organisation for rare disease, advocating for Australians living with ra...
Phone: +61497003104
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The Belgian National Alliance, RADIORG, has grown with Rare Disease Day, first coming together in 2008. They now represe...
Phone: +32478727703
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The mission of BORDIS is to create an environment where Rare disease patients thrive by building strong collaborations a...
Phone: +26771692565
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CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong c...
Phone: +14169697464
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Para trabajar de una forma estructurada y unificada en las necesidades de los pacientes y en las que surgen de nuestro c...
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The Cyprus Alliance for Rare Disorders (CARD) was founded in 2010 and now comes together as the voice of around 6000 rar...
Phone: +35722203762
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Rare Diseases Denmark is a national alliance of 53 rare disease societies. We also host NURD - Network for Ultra Rare Di...
Phone: +4533140010
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Founded in 2000, "Alliance Maladies Rares" today includes more than 230 patient organizations and represents nearly 3 mi...
Phone: +33156535343
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ACHSE e.V.     - Giving "rare" a voiceACHSE - Rare Diseases Germany is the German Alliance for the estimated 4 Million p...
Phone: +4930330070826
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“95”, Rare Alliance Greece is a Greek non-profit Organization advocating for all who live with a rare and an undiagnosed...
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Rare Diseases Hungary - The Hungarian Federation of People with Rare and Congenital Diseases - (HUFERDIS) was created in...
Phone: +3617904532
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The Organization for Rare Diseases India (ORDI)  is a national umbrella organization which represents millions of men, w...
Phone: +919980133300
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Ireland first participated in Rare Disease Day in 2008. Since then Rare Disease Day has been marked annually on the last...
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Aux Pas Du Cœur entend mobiliser et sensibiliser les populations sur l’existence des maladies neuromusculaires à inclusi...
Phone: +22508423645
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希少・難治性疾患の病気に苦しむ人は世界中にいます。 それにもかかわらず、患者数が少なかったり、病気のメカニズムが複雑なため、治療薬・診断方法の研究開発がほとんど進んでいない例もあります。Rare Disease Day (世界希少・難治性疾...
Phone: +81354379045
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Malaysian Rare Disorders Society is a support group for families with rare disorders in Malaysia. MRDS has been organisi...
Phone: +600197714543
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We are a federation of Mexican patients' associations helping and supporting people suffering from rare diseases. We are...
Phone: +527773333732
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The Dutch Genetic Alliance VSOP (www.vsop.nl) is an umbrella organisation of about 70 national, disease-linked, parent a...
Phone: +31356034040
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In Macedonia, Rare Disease Day celebrations began in 2012, as organized by the patient organization "Life with Challenge...
Phone: +38970705446
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With the release of Presidential Proclamation No. 1989 on February 8, 2010 declaring the last week of February as ‘Natio...
Phone: +6326618935
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Aliança is a non-profit organization. Aliança's goals are to work on prevention, diagnostics and rare disease treatment ...
Phone: +351914632404
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Founded in 2010, the National Organisation for Rare Diseases of Serbia is an umbrella organisation bringing together dif...
Phone: +381666672701
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Rare Diseases South Africa fights to have rare diseases and congenital disorders recognised and treated. By connecting p...
Phone: +27726236763
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The feelings of isolation and helplessness associated with rare diseases are experienced by over 3 million families in S...
Phone: +34915334008
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NORD, the National Organization for Rare Disorders, joined Rare Disease Day in 2009 as the official US sponsor of the da...
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