The story of Michaela
In March 2020 lillie was just 3 months old, she was admitted to hospital and diagnosed with neurofibromatosis type 1. We had never heard of nf before this. This has being a whirlwind of a journey so far. However lillie is a strong independent little girl. With the support of our wonderful doctors and ctt foundation and neurofibromatosis support groups I know lillie will be just perfect the way she is, just like the other nf warriors.Â
Â
*Find others with Neurofibromatosis type 1Â on RareConnect, the online platform for people affected by rare diseasesÂ