The story of Damir
Hi! We are from Belgrade,Serbia,Europe..Our son is a five and a half years old boy,who was totally healthy kid,when in a july 2016 he get sick from Transverzal Myelitis.
All start as a respiratory infection at 25.07.2016-th.He had a headache,he was coughing,and he have a temperature ( highest was 38,2 C).Pediatrition gave him a antibiotic –Hemomicin,and after three days he was better, and he had no temperature.Unfortunatly,one day after,at 29.07. he had hedache,coughing, temperature ( 37,7 C ),and he complained on a neck pain.Pediatrition send us to Pulmonologist,but lungs were good,x-ray show nothing,but because of his pain in a neck,he send us to ORL ,who suspected on Meningytis.He was examined by a Pediatrition and a Neurologist on the other clinic ( Institut For Mother and Child –Belgrade),who rejected possibility of meningyts,and all that pain and spasm in a neck and shoulder,is caused by virus.We went home,where he cryed all night I complained about pain in a muscles lumbar spine and gluteus,pain in a neck and a headache.
On a 30.07.we went to another children clinik ( University clinik Tiršova _Belgrade),where the analysis of blood and urin were good.They said that it was a Virus ( flu ) and that wil pass,and they send us home.
During the evening,we have notice that he can not stay in his foot,so we went to the doctor first thing in the morning.We went To “Istitut For Mother and Child”,where Dimitrije was examined by a Pediatrition ( low experienced ),who suggested us a inhalation and antibiotic-Hemomicin again.He let us go home,although we show him that his left foot was wery weak.
However,we were not satisfied,with his conclusion,so we went to private clinic “Bel Medic “,where he was examine by a Neurologist.They done a CT , where he described the expansion chamber system,and Dimitrije was emurgency send back to “Istitut For Mother and Child”.He was immediately put in department of Intensive care,where he was 5 days.The same night,he was admitted at ICU his left foot was totally taken away,he also lose bladder and sphincter control.They gave him immunoglobuline,corticosteroide,antibiotics immediately.MR showed that it was Transverse myelitis,that swept whole spine from 3 vertebra down.First three days were critic,but after he start to recover slowly.Fter 5 days on ICU,he was transvered on Department of Neurology,and there were 40 days.
In spite of a lot of analysis ,cause never find out.
On a last control,MR showed that there is still inflammation ,but less then before.He is recovereing slowly,he can crawl,he can stay on his foot for 20 min,but he can not walk.His right leg is recovered for 80%,but his left don’t react from the knee down.
Diagnosys: Myelytis Transverzalis acuta G37.3
Ventriculomegalia G94.2
Hypercalciuria E 83.5
If you have some,advice,you know for some clinic,Doctor,anywhere who can help us,please send us a feedback,or write us to [email protected].
Thanks in advance.
Vrbanić family