The story of Xander
My parents told me when I was around 6-8 years I had a syndrome. I never asked anything about it. I didn’t even know what a syndrome was. Some years later I asked again things about it and needed Some surgery’s to get a extra bone out my feet. So my syndrome is greig. It affects how You look like. So like u know I had something extra. Thats 1 of the things that can happen extra fingers and toes. I still need surgery’s to remove things from the sydnrome and I will be 18 soon either. The hard thing living with it is because nobody or not that much people know about it or how u feel with it. I hope everyone with a rare disease have somebody to talk too. I will never be alone. 🙂