The story of jole
Four days before Christmass 2018, my doctor called and informed me that I have a rare disease – one that not even she had ever heard of, that she had to research it to be sure it was real…She called it: The Nutcracker Syndrome. Having since been to a specialist, who also did not understand the disease, I have learned I was born with this. The symptoms that indicate its presence I have had for many years, not knowing or understanding the reasons for my maladys. There is so little understood about this disease, I find little support, and research is equally limited. Learning to live with, and understand a rare condition changes your outlook on life, and it makes support groups and networks a wonderful tool…I am not as alone as I once thought. And I look forward to progression of knowledge and understanding of a disease that is shared by others.