The story of Wendy
Hello. My name is Wendy, and this is my story. I was born with OI (Osteogenesis Imperfecta) type includes All. I am 37, and have broken just about everything in my body. There is no cure for this rare disease and it is hell everyday on the inside. My body looks normal, but very fragile. Walking down a hill could lead to a broken bone or bones. Almost as if I was made of glass. I have 3 children; All boys. I passed the gene down to them. They also suffer from OI. Constant broken bones, chipped or broken teeth, respiratory problems, length leg discrepancy, respiratory problems, bone deformations, and the list goes on. Taking care of myself and them is a daily struggle. Sometimes I go into the bathroom turn the water on, and just cry and pray to get myself together for them and do my job as their mother. I love them very much, and having to watch them go threw this their entire life is heartbreaking. Kissing their booboo’s, telling them that its going to be ok mommy will fix it, gets to me a lot. I honestly don’t know how I manage? Currently I am trying to get help from any and everyone who can help. My 4yr old needs rodding surgery on his leg/foot right now. I do not have the funds to do that at the moment. Disability is a joke in my case. We are currently still waiting for the department to “handle our case”. Doctors here in Georgia look at us and say I’ve heard of this when I was studying in school? That doesn’t help much in our case. The best doctors that we need are not in our state and I don’t have the means to travel for all 4 of us. This rare disease is quite a mess. I get the best medicine from strangers who reach out with just simple kind words and encouragement that it will get better.Â