The story of Marc and Christy
When our son Logan was first diagnosed with Galactosemia our world fell apart. Having a rare disease was frightening and with the information we were first given we didn’t know what we were going to feed our boy. Our first nutritionist gave us multiple sources of information, one being an older, but thorough, book compiled by Abbott. It was still frustrating but we at least had an outline of what not to feed Logan.
Both my wife and I are lovers of food, from all cultures and food groups, and we were sad Logan was going to miss out on so much. However, with the continued reasearch by amazing people, a better understanding of the disease and the metabolic aspect of foods was uncovered. Now we are able to look through a whole produce section and know these are safe foods.
Scary foods such as legumes, blueberrries, and watermelon are now being happily consumed by our amazing rare disease boy. It is such a relief to be able to have family dinners where there is a shared food on all our plates. We have an older son who gets to have the restricted food items on his plate and we are blessed by that because we know it will help Logan learn that there are things he can’t eat, and they won’t be such a mystery to him.
We are so thankful for the continued research to help improve the life of all that are touched by a rare diseases. For us continued research means a healthier life for our boy.