The story of Ethan
Ethan was born prematurely with defects in the kidney. Bartter syndrome begins in uterus it means that baby is suffering from dehydration and pain before birth. Due to enormous amount of fluids, baby is born premature with low weight and poor growth. Ethan is a survivor. He was the first kid who became active advocate for Bartter syndrome and his famous speech started with -I am the Face of Bartter syndrome. He has succeseed in promoting Bartter into Awareness Day for his condition. Today Ethan is 16 and continues fighting against Bartter and advocates on behalf of many families who is affected by Bartter syndrome.Â