The story of Noah
Noah was born with Cloves syndrome 5 years ago. This is a very rare genetic disorder that affects his vascular system. It causes parts of his body to keep growing resulting in having bigger body parts. There are roughly 300 people diagnosed with CLOVES in the world. Noah is a superhero and I am always in such awe of how awesome he is. He has very large hands that may look weird to some people but they are his superhero hands. We love our rare boy so much and we are so very thankful for him! We spend a lot of time traveling to a few different hospitals that specialize in what he has. Noah has to get bloodwork all the time which he handles like a champ! We are thankful for rare disease day because we can share Noah to the world and tell them all about CLOVES syndrome. Noah has one of the best personalities in the world and he is so funny! We just love him so much!