The story of Hester
Syringomyelia is caused by a Syrinx, fluid filled bubble. It resides in my spinal cord c1-c7. I’m always in pain, can’t be actively adventurous as used to be, I trip myself, fall, get hurt and a lot of other symptoms. It’s good now to know what is the cause of my ailments. I find I always have to explain the disease, people look at me and think that nothing is wrong with me! You actually suffer alone, but I’m blessed with a loving husband that understand and support me. I know now, don’t do stuff that is extreme, you suffer the consequence for days on end, find something that is fulfilling and you can still live life. Hang on and live through prayer.