The story of Victoria
My son was Diagnose with Sprengel’s Deformity. Sprengel’s Deformty complex anomaly that is associated with malposition and dysplasia of the scapula. This condition also involves regional muscle hypoplasia or atrophy, which causes disfigurement and limitation of shoulder movement. Sprengel deformity is the most common congenital malformation of the shoulder girdleresults in symptomatic cosmetic and functional disability.. The male-to-female ratio is 3:1. MEdscape,2015).
When he was first diagnose I had no Idea of what all that meant. We are still in search of treatments and helping others. Surgery is possible for young children from 3 to 8 years old but limited to older Adults. At this time he is 10 months old, he is able to have almost ful ROM. Changes will be seen as he grows. There is not enough studies on this condition, but I want to rase awareness to one day have someone study our Sprengel Deformity community.