The story of Lola
I’m Lola and I have Angelman syndrome, a neurogenetic disorder that means that I have to overcome developmental delays, intellectual disabilities, sleep disorders, seizures, balance and coordination impairment, and the inability to use words to communicate. I have to work very hard to do simple tasks and I am still learning to do many basic self care skills, but I have a wonderful family and support system that loves and cares for me. And I am determined to learn new things and crush my goals! I love to smile, laugh, snuggle, dance and make everyone feel loved! It’s my super power!