The story of Nelson
I come here Share a little of my life with a Charcot-Marie-Tooth disease type 1, I have lived within the precise until today that I am 46 years old with this disease, in a more natural and normal way possible, although in recent years More than 10 years ago you have some evolution, a disease that seemed stabilized.
I am accompanied, by a multidisciplinary team, in the consultation of Neuromuscular, of the Hospital of Santa Maria in Lisbon, in the consultation of Physiatry, in the same Hospital, already has been operated by the right foot for the correction of the cavus foot that is very accentuated, Physiotherapy that Hydrotherapy, although it has some consequences to the level of back pain and articulations, which is more important for my callus creation needs, which led me to have a lap to use orthopedic insoles for measure, and orthopedic footwear, where currently undergoing Butolinica Toxin Treatments.
As complaints, the design, the form of expression are, the partial stops, the breathing syndrome, the form of expression of a more evident woman, as well as the existing disease, the Otorhinolaryngology of the Hospital of Santa Maria.
Starting a possibility of generating a wheelchair and exercise for a wheelchair as the floor from a floor to the floor and constant imbalances. It wants to be as poor as it is poor, and with a capacity for response from public health, social support and government agencies, even though it has taken very long, very slow steps.