The story of Becky
I am living with Multiple Endocrine Neoplasia 2a. It’s a rare genetic disorder that I was born with. It causes Medullary Thyroid Cancer, which has no cure, tumors of the adrenal glands and hyperparathyroidism. As tired as I get, I am a distance runner and use running to keep my mind and body healthy. I also run to raise money for research for my rare disease. I speak at events, educating people about the need for more research and treatment options for people like me. Every day is new and unique. Every day is rare! I try to live fully and completely on each one of those unique days.
Meet others living with MEN on RareConnect:
https://www.rareconnect.org/en/community/multiple-endocrine-neoplasia