The story of Rachel
Today is RARE DISEASE DAY 2018 and I have joined in with the #ShowYourRare campaign painting my face with UV face paints and sharing my story on Youtube!Â
I talk about my rare disease Pure Autonomic Failure which has resulted in an ileostomy and a urostomy (I have decorated my bags and I have shown them during the video!)
An estimated 300 million people around the world are diagnosed with Rare diseases, covering over 6000 different diseases!
So rare is not so rare after all!
Thank you for watching and Happy Rare Disease Day everybody!!!