The story of Daryl
I have lived with this condition for 16 years and because I live in Northern Ireland there isn’t much help and it’s very hard to deal on your own I have also a lot of allergies and I am glad that on the 28 February we have this rare Disease Day hope people who are coming to the avent will see I an making a stand for Porphyria people
Meet others who understand on the international porphyria community on RareConnect.org: