PNHp

The story of Agnes

I was diagnosed with severe aplastic anemia in 2004 .   Prior to that I was feeling tired all the time and couldn’t keep my eyes opened.  I thought I was iron deprived but that wasn’t the case.   Thankfully I found an amazing doctor and after undergoing immumsuppresive therapy I was good for two years until my doctor suspected I may have PNH which was confirmed.  I was on Soliris for 7 years and am now on Ultimiris.  

 

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