The story of Coco
Bryce is a very social and loving 5 year old with a love for bells. In Bryce’s five short years, he has endured a lifetime of challenges and has had to overcome many adversities. At three months old he was diagnosed with Williams Syndrome (WS), a rare genetic syndrome often associated with cardiac issues, intellectual disabilities, distinct facial features and a very endearing personality with an affinity for music. Williams Syndrome occurs spontaneously in 1 in 10,000 births. It’s caused by a deletion of Genes on one strand of the 26th chromosome. 90% of infants with WS require open heart surgery before the age of one and Bryce was no exception. At 5 months old he had a 7 hr open heart surgery and spent 2.5 hrs on bypass. At age one, he started going unconscious throughout the day and was diagnosed with a rare form of right temporal lobe epilepsy, presenting as apneic seizures. There seem to be health issues that pop up around every corner but Bryce is extremely resilient and has taught me to see the beauty in everyday, never taking a moment of it for granted. Bryce is rare and to us he is Godsent.
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