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Día Cero. A partir de hoy tengo artiris psoriática

estoy viviendo mi día, cero, semana cero y mes cero de enterarme que tengo una enfermedad, no la conozco, no he vivido antes con ella,… Continue reading Día Cero. A partir de hoy tengo artiris psoriática

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Why fit in when you were born to stand out?

Huntley’s journey began long before we held him in our arms. At just 20 weeks into the pregnancy, we learned that something wasn’t quite right.… Continue reading Why fit in when you were born to stand out?

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My eyes kind of hate me

I was born relatively healthy. Sure, a bit premature and my mom had a fever, but I was home 3 days later. At 2 years… Continue reading My eyes kind of hate me

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My medical life

Hi my name is Owain I’m a 16 year old boy from Milton Keynes and I have a condition called Noonans syndrome. Noonan syndrome is… Continue reading My medical life

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I’m sad

i have Duchenne Muscular Dystrophy

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Rarest Rylee

A few weeks after I was born, I refused to feed. My mommy thought there was something wrong with her breast milk and decided to… Continue reading Rarest Rylee

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Mi diagnóstico a mis 28 años

Soy Luciana, tengo 42 años y me diagnosticaron Síndrome de Muckle Wells, una EPOF que se caracteriza por ser un síndrome autoinflamatorio que tiene muchos… Continue reading Mi diagnóstico a mis 28 años

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A Warrior Named Remi

Meet Remi Sophia Savioz, a true warrior! Like many diagnosed with a rare disease, Remi has faced a lifetime of challenges. But she refuses to… Continue reading A Warrior Named Remi

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Hydrolzine induced ANCA Vasculitis

I received news that I had a very rare form of Vasculitis in 2020. It was caused by a blood pressure drug called Hadrolozine a… Continue reading Hydrolzine induced ANCA Vasculitis

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