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FEARLESS!

April 8th, 2011 began my journey of going blind. Out of the blue that day at work, I felt off-balance and my eyes felt weird.… Continue reading FEARLESS!

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Life with Lymphedema

I was 13 years old the first time I felt the onset of lymphedema. At the time, I had no idea what lymphedema was, and… Continue reading Life with Lymphedema

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Combined Cobalamin Defect

I was Diagnosed with Combined Cobalamin Defect when I was 8 years old and have been a Non Paid Patient Human Research Subject for Children’s… Continue reading Combined Cobalamin Defect

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Living with a rare disease

Coming from a family of six siblings, we have three rare diseases and I am the one blessed with all of them. fortunately there are… Continue reading Living with a rare disease

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HypoGal My Story With Sheehan’s Syndrome, Relapsing Polychondritis

HypoGal Shares Information about Disability Insurance, Sheehan’s Syndrome and Relapsing Polychondritis (R.P.) HypoGal, My Story My Story; most of my life I have never considered… Continue reading HypoGal My Story With Sheehan’s Syndrome, Relapsing Polychondritis

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My Story with Mesotehlioma

When I was younger, I would wear my dads work jacket around the house to do outside chores. My dad worked in construction and it… Continue reading My Story with Mesotehlioma

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Remaining Silent Does Not Raise Awareness

My story is about my hero my daughter Savanna Grace Thompson who is 3 , she is such a beautiful gift that was sent by… Continue reading Remaining Silent Does Not Raise Awareness

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COCKAYNE SYNDROME. .SCOTTY CAHILL

Our second child was born may 2,1973 he was normal in all ways except he had bilateral cataracts he had his first surgery at 6… Continue reading COCKAYNE SYNDROME. .SCOTTY CAHILL

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Mastocytosis

At age 5 I began to get little red spots on my. After biopsy of them, I learned I had urticaria pigmentosa , also known… Continue reading Mastocytosis

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