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Sheehans syndrome causing hypopituitarism and secondary addisons disease

So I had decided to have another baby. My first had been born premature with inter uterine growth restriction. I’d also suffered a thrombotic storm… Continue reading Sheehans syndrome causing hypopituitarism and secondary addisons disease

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Mysterious Mess

I am a 23 year old female suffering and surviving. I have had several diagnosis slapped on me such as Ehlers Danlos Syndrome, Proctalgia Fugax,… Continue reading Mysterious Mess

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Crazy 1st month

My daughter Ava was born January 17, 2016. At one day old she was sent to a NICU and stayed for a week and a… Continue reading Crazy 1st month

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Struggle to Eat with PV & UC

Pemphigus Vulgaris (PV) is an autoimmune disorder that involves blistering and sores of the skin and mucus membranes. They are basically open sores that won’t… Continue reading Struggle to Eat with PV & UC

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Every day a new challenge

I’m Jasmina Stojkovska from Prilep, Macedonia.I have acromegaly diagnosed almost 13 years.My path is thorny and difficult.The first signs of illness I had in 2001.Then… Continue reading Every day a new challenge

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Atypical Trigeminal Neuralgia

About 18 months ago I was diagnosed with atypical Trigeminal Neuralgia – the rare form of a rare disease. I went from 100 miles an… Continue reading Atypical Trigeminal Neuralgia

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My beautiful brave warrior !!

My beautiful daughter Kalani Grace was diagnosed with a rare disease at 20 weeks during my sonogram check up. I went for my sono to… Continue reading My beautiful brave warrior !!

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PCCA2

On May 12 2012 my precious angel Breonna passed away at the age of 6. At this time she was undiagnosed, almost a year later… Continue reading PCCA2

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