Filters

The Years That Passed Me By…

My autoimmune problems started when I was really young having a lot of hereditary illnesses. I’ve had Reynauds for as long as I can remember.… Continue reading The Years That Passed Me By…

Read full story

My life As a Walking Taboo: Living With Malodor Disorder

I suffer from a malodor disorder called TMAU. Although I’ve been aware of my disorder for fifteen years, I’ve never spoken about it with anyone… Continue reading My life As a Walking Taboo: Living With Malodor Disorder

Read full story

It is just a vitamin

6 years ago I was a healthy hard working mom of 2 teenagers. Then one day when I was at work I realized I could… Continue reading It is just a vitamin

Read full story

My Child has just been diagnosed with a fatal disease! Now What?

My Child has been diagnosed with a fatal disease, Now What? Many of you will understand and remember well the moment you were told the… Continue reading My Child has just been diagnosed with a fatal disease! Now What?

Read full story

Kidney Disease

When I was a born I was diagnosed with the kidney disease it was sad i was in and out of hospitals my whole life.… Continue reading Kidney Disease

Read full story

Kidney Disease

When I was a born I was diagnosed with the kidney disease it was sad i was in and out of hospitals my whole life.… Continue reading Kidney Disease

Read full story

Jessi’s Journey

I have always heard your teenage years are the hardest. If I had only known how horrific they would soon become for me I would… Continue reading Jessi’s Journey

Read full story

WHEN I WAS DYING

WHEN I WAS DYING ….. I shouldn’t imagine there are many people who are still here to be able to tell a tale with the… Continue reading WHEN I WAS DYING

Read full story

The day my life changed forever

I was diagnosed with a severe case of Superior Mesenteric Artery Syndrome in Austin, TX on 11/26/2010. I spent three weeks in three hospitals and… Continue reading The day my life changed forever

Read full story
What's your story?

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!

Share your story

Share your colours

Join the community. Help us build awareness. Share your photos, videos and experiences!