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Tyler has PANDAS…. PANDAS doesn’t have Tyler

Up until a year ago I was told that my son Tyler had Tourette’s, OCD, Anxiety, and ADHD/ADD. Of course this was mind-blowing and hard… Continue reading Tyler has PANDAS…. PANDAS doesn’t have Tyler

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Zebra et.al.

Was always getting ‘sick’ as a child. Nothing major, just a bunch of little unrelated stuff.Allergies galore! Stomach issues, GERD, inability to gain proper weight,… Continue reading Zebra et.al.

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Madelynn Rose 4Qtie

Im a mom to 3 wonderful kiddos! Madelynn is our middle child. She was diagnosised at age 4 with 4Q Deletion Syndrome 32.1- 35.2. Madelynn… Continue reading Madelynn Rose 4Qtie

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Noemí with Reflex Sympathetic Dystrophy

My name is Noemí, I am 24 years old and I live in Spain. I suffered from this disease since 2015, Complex Regional Pain Syndrome… Continue reading Noemí with Reflex Sympathetic Dystrophy

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Ohio mom with AVN

Hi everyone. I have read all of your stories and it has made me feel better. It is hard to get your family and friends… Continue reading Ohio mom with AVN

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Fight For Cures

Summary I have officially survived Acute Lymphoblastic Leukemia (ALL) seven times! On October 26, 2010, I began treatment at Stanford University Cancer Center. When I… Continue reading Fight For Cures

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Scimitar Syndrome

I was born 8 weeks premature in March 1997. At 3 months old, I developed a chest infection and it was then where I was… Continue reading Scimitar Syndrome

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Idiopathic pulmonary hemosiderosis

Im a woman, 45 years old living in Sweden. I was diagnosed with IPH; idiopathic pulmonary hemosiderosis in june 2015. I have suffered from severe… Continue reading Idiopathic pulmonary hemosiderosis

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Tommy’s story about life with hypogammaglobulinemia

Tommy’s story about life with hypogammaglobulinemia Hello everyone, I was diagnosed with hypogammaglobulinemia seven years ago after 54 years of trying to get to the… Continue reading Tommy’s story about life with hypogammaglobulinemia

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