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Luchar día a día para salir Victoriosa

Maria Victoria es mi última hermana de tan solo tres años. Cuando nació fue apartada de mi madre por presentar deshidratación y desnutrición. Lo que… Continue reading Luchar día a día para salir Victoriosa

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Talynn’s Journey with Bohring-Opitz Syndrome

Talynn Gurganus was born at 35 weeks on January 27, 2014. At birth, she was transported to CHKD and spent 3 ½ weeks in the… Continue reading Talynn’s Journey with Bohring-Opitz Syndrome

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Fighter

When I was around 14/15 years old, I was diagnosed with scoliosis. At that time, I was riding horses and loved it, so with a… Continue reading Fighter

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From an Anuerysmal bone cyst to Fibrous Dysplasia

When I was 17 I found out I had an (A B C) Aneurysmal Bone Cyst in my right humerus, A.B.Cyst causes your bone to… Continue reading From an Anuerysmal bone cyst to Fibrous Dysplasia

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Maaladie de crowfeld Jacob

Bonjour, Je ne sais par où commencer…je me présente je m’appelle lamia je suis issue d’une très grande et merveilleuse famille. Si je VOUS écrit… Continue reading Maaladie de crowfeld Jacob

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CHAMP1 Gene

Calum McPherson’s condition has left him with severe speech difficulties. There are a few important things to know when you first meet young Calum McPherson.… Continue reading CHAMP1 Gene

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Australia

4 years ago I was diagnosed with autoimmune hepatitis, I have been in remission for 1 year but still have other health issues, I would… Continue reading Australia

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Endless love

Augusto Mezadri was born on April 24, 2014. He is Daniela and Lucas Mezadri’s son. He was diagnosed with Mucolipidosis II when he was 14… Continue reading Endless love

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Mito Warrior

Hi,I’m 28 years old and have been battling mitochondrial disease for at least the past 10 years.I’ve had a stroke at 25,epilepsy diagnosed at 25… Continue reading Mito Warrior

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