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Weighing Me Down

When I started 6th grade, I started to fake being sick because I was too tired to go to school. In eighth grade, I was… Continue reading Weighing Me Down

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my mommys journey

After church on April 29th 2012, my mommy’s life changed. After church, we were going up stairs but while we were, my mommy thought she… Continue reading my mommys journey

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Living with Georderma Osteodypladtica

I was born with a genetic disease, there is no cure and it comes with many struggles. The disorder affects my entire body, from my… Continue reading Living with Georderma Osteodypladtica

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Luchar día a día para salir Victoriosa

Maria Victoria es mi última hermana de tan solo tres años. Cuando nació fue apartada de mi madre por presentar deshidratación y desnutrición. Lo que… Continue reading Luchar día a día para salir Victoriosa

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Talynn’s Journey with Bohring-Opitz Syndrome

Talynn Gurganus was born at 35 weeks on January 27, 2014. At birth, she was transported to CHKD and spent 3 ½ weeks in the… Continue reading Talynn’s Journey with Bohring-Opitz Syndrome

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Fighter

When I was around 14/15 years old, I was diagnosed with scoliosis. At that time, I was riding horses and loved it, so with a… Continue reading Fighter

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From an Anuerysmal bone cyst to Fibrous Dysplasia

When I was 17 I found out I had an (A B C) Aneurysmal Bone Cyst in my right humerus, A.B.Cyst causes your bone to… Continue reading From an Anuerysmal bone cyst to Fibrous Dysplasia

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Maaladie de crowfeld Jacob

Bonjour, Je ne sais par où commencer…je me présente je m’appelle lamia je suis issue d’une très grande et merveilleuse famille. Si je VOUS écrit… Continue reading Maaladie de crowfeld Jacob

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CHAMP1 Gene

Calum McPherson’s condition has left him with severe speech difficulties. There are a few important things to know when you first meet young Calum McPherson.… Continue reading CHAMP1 Gene

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