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I am a Miracle!

I was born with a triple whammy in my brain 57 years ago. I was diagnosed just 15 years ago March 1st 2002 with a… Continue reading I am a Miracle!

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My Multiple Auto Immune Fight

Several years ago I had elevated liver enzymes. My internist wanted me to have a biopsy. Since I as going to have some hernia surgery,… Continue reading My Multiple Auto Immune Fight

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Primary Biliary Cholangitis

Disgnosed 10 years ago on Valentines Day after years of fatique, joint pain, itching, digestion issues, quickly fading thyroid, etc. Dr Marshall Kaplan at Tufts… Continue reading Primary Biliary Cholangitis

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ARACHNOIDITIS The Web of Silence

I have Adhesive Arachnoiditis, a rare neurological disease that affects the nervous system all over the body. It is excruciatingly painful and there is no… Continue reading ARACHNOIDITIS The Web of Silence

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Getting a Handle on my Health: Life with Congenital Panhypopituitarism and ONH

I have congenital panhypopituitarism, caused by Optic Nerve Hypoplasia (ONH), also known as Septooptic Dysplasia (SOD). Long words, I know! It took me nearly 20… Continue reading Getting a Handle on my Health: Life with Congenital Panhypopituitarism and ONH

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Priceless

I have been recently diagnosed with a rare skin eating disease. To this day I’m still in shock and still haven’t completely wrap my thoughts… Continue reading Priceless

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My daughter’s story

At the age of 10 my daughter was diagnosed with P.A.N.D.A.S (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) and affects 1 and 200 children.… Continue reading My daughter’s story

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autoimmune hepatitis

My daughter got sick around the age 2. She been thought hell and back. Test after test.. 1000’s of tubes or blood. 3 three different… Continue reading autoimmune hepatitis

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Caroli disease

I have a disease called Caroli disease. Since being told in 2006 that I have it and surgery in 2006. I learned in February 2013… Continue reading Caroli disease

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