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Tarlov Cyst, dolor cronico

  Es primordial saber que es el dolor, como afrontar el miedo que provoca el dolor, miedo es ansiedad, ansiedad es depresión….las pastillas tienen efectos… Continue reading Tarlov Cyst, dolor cronico

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Gavins Story

My Son, Gavin was born and appeared to be a perfect healthy baby on August 28th 2017, weighing in at 7lb 8oz. Three days after… Continue reading Gavins Story

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KEEP ON FOLLOWING YOUR TOES

On the night of September 9th 2016, I honestly felt as if I had a stomach virus or had eaten some type of bad food product.… Continue reading KEEP ON FOLLOWING YOUR TOES

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Landau Kleffner Syndrome

My name is Michelle Whitelaw. I am from Brisbane Australia. My 13 yr old son, Jai Whitelaw, has Landau Kleffner Syndrome with EESES and Autism.… Continue reading Landau Kleffner Syndrome

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Giving it all to God!!

I was diagnosed with (SMAS) on 11/26/10 and spent three weeks in three seperate hospitals that doctors knew nothing about this rare disease.  I then… Continue reading Giving it all to God!!

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Defeating Duane Syndrome

After daily struggle with Duane syndrome for 30 years I finally won the fight This is my story My name is Dana, I’m Palestinian by… Continue reading Defeating Duane Syndrome

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My journey: Myofibular myopathy

I’m 13 years old. I was born with a disease myofibular myopathy. I was never supposed to walk, but I did, differently. I would shift… Continue reading My journey: Myofibular myopathy

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