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MLD warriors from pakistan

This world is not a place where people can be together forever. Therefore no relationship can be taken for granted. I realized this when my… Continue reading MLD warriors from pakistan

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Suffering a rare disease Neuroendocrine Carcinoma (Thymoma)

Hello everyone my name is Freddie Dela Cruz Concepcion, 42-years old from Philippines and has been suffering a rare disease called Neuroendocrine Carcinoma diagnose by… Continue reading Suffering a rare disease Neuroendocrine Carcinoma (Thymoma)

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Ci sono anch’io

Ho 30 anni e ho la sclerosi tuberosa per fortuna in forma lieve . Apparentemente  sembro una ragazza  normale vorrei un  mondo dove l’ignoranza tra… Continue reading Ci sono anch’io

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Síndrome de Noonan,No lo elegimos apareció en nuestras vidas hace 15 años

Somos una familia como cualquier de vosotras,hace 15 años nacio Miguel y con el vino el Síndrome de Noonan,con el cual estamos luchando todos,y digo… Continue reading Síndrome de Noonan,No lo elegimos apareció en nuestras vidas hace 15 años

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Baby Frank is a Fighter

I had an emergency c-section at 36 weeks. My Baby was born with a life threatening congenital heart defect called Dilated cardiomyopathy. He has been… Continue reading Baby Frank is a Fighter

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Tarlov Cyst, dolor cronico

  Es primordial saber que es el dolor, como afrontar el miedo que provoca el dolor, miedo es ansiedad, ansiedad es depresión….las pastillas tienen efectos… Continue reading Tarlov Cyst, dolor cronico

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Gavins Story

My Son, Gavin was born and appeared to be a perfect healthy baby on August 28th 2017, weighing in at 7lb 8oz. Three days after… Continue reading Gavins Story

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KEEP ON FOLLOWING YOUR TOES

On the night of September 9th 2016, I honestly felt as if I had a stomach virus or had eaten some type of bad food product.… Continue reading KEEP ON FOLLOWING YOUR TOES

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Landau Kleffner Syndrome

My name is Michelle Whitelaw. I am from Brisbane Australia. My 13 yr old son, Jai Whitelaw, has Landau Kleffner Syndrome with EESES and Autism.… Continue reading Landau Kleffner Syndrome

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