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Alannahs Diary

Hello, on behalf of my 19 month old daughter Alannah I am sharing her story.  On the 6th of February 2017 Alannah was rushed into hospital… Continue reading Alannahs Diary

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Il Nostro piedino magico

Silvia ha 2 anni , la sua malformazione si chiama macrodattilia con sindattilia al secondo e terzo dito , e la macrodattilia  prende il piede sinistro… Continue reading Il Nostro piedino magico

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Macrodactyly

My name is Federica and I live in Italy with my our 2 children, manuel 11 and riccardo  9 years old, respectively. Manuel have  a… Continue reading Macrodactyly

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Optic Nerve Hypoplasia and Septo Optic Dysplasia

My beautiful daughter- Piper, has Optic Nerve Hypoplasia, and recently she was also diagnosed with Septo Optic dysplasia. These rare diseases deem her legally blind – a tough… Continue reading Optic Nerve Hypoplasia and Septo Optic Dysplasia

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Got the gist of things.

I had had back problems for several years and at the end of 2008 I had my Gallbladder emoted due to nausea I was having.… Continue reading Got the gist of things.

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I Have CRPS and I am Aware that I am RARE

I was a mother of two teen girls and I drove a mini van full of teenagers to the mall frequently. We went to Swim… Continue reading I Have CRPS and I am Aware that I am RARE

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Rollercoaster Ride

Growing up, I was constantly bullied due to my awkward appearance. At the time, we had no idea that my physical appearance was due to… Continue reading Rollercoaster Ride

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Silently Persevering

Everyone has their battles. Everyone gets tired, and everyone gets unhappy. But it’s difficult when you are dealing with health struggles that are out of… Continue reading Silently Persevering

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DOBLE LUCHA

hola soy Jorge y esta es mi historia. atando cabos, desde pequeño padecia algunos dolores en los miembros inferiores pero por ser el menor de… Continue reading DOBLE LUCHA

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