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Superhero siblings

My two little superhero’s,  My second daughter Maddee was born in January 2012, she was a perfect tiny 5 and half pound and 44cm  she fit… Continue reading Superhero siblings

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My struggle with Pemphigus

In April 2017 I started getting ‘ulcers’ in my mouth that just wouldn’t go! I visited the dr who said there was nothing they could do… Continue reading My struggle with Pemphigus

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My miracle journey

I would like to share my miracle story with others to help inspire them and give them hope it’s a way of me paying it… Continue reading My miracle journey

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The Red and White Twins

At 10 weeks pregnant, I can still remember the look on my ultrasound technician’s face.  “They told you you were having a baby? ” Well,… Continue reading The Red and White Twins

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Always Tired and Bruising Like a Peach

After over 13 years of living with my ITP I can reflect upon plenty of incidents during that time. It has certainly been eventful, to say the… Continue reading Always Tired and Bruising Like a Peach

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Chylles’ ROHHAD Fight

Chylles  was healthy, high energy little girl with no fears, no worries & full of life. That’s before she was affected by ROHHAD symptoms just… Continue reading Chylles’ ROHHAD Fight

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Tumbelina

I had to show my California ID, when I was already over 18 to a lady that works at Walmart so I could get a… Continue reading Tumbelina

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No limitations

Hello,  This is not my story, but of my grandson. Back in 2012, I was blessed with my first grandchild. Jayden came into our lives and… Continue reading No limitations

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A Rare Reality

A short film on GNE Myopathy patient Shilpi and narrated in her own words. Shilpi is a lawyer and currently teaches at O.P Jindal Global… Continue reading A Rare Reality

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