The story of Charlotte
Millie was diagnosed with Wiedemann-steiner syndrome in January 2020 after waiting 5 years since joining the NHS 100,000 Genomes project.
She has many difficulties, and global development delay but she is the funniest, kind hearted little girl who doesnt let her difficulties get to her. We as parents know how much this affects her daily life, and she will always have these issues growing up.
We would not change her for the world.