The story of Olivia
Olivia Mae is our spunky, soon to be 3 year old, who is living her best life.
In May of 2019, Olivia was diagnosed with a rare genetic disease called Rett Syndrome. Rett is a neurological disorders that affects her ability to walk, talk, eat and even breathe easily. Rett can cause seizures and a loss of hand control. Despite her daily challenges, Olivia is like most 3 year olds her age. She loves “Frozen”, dancing to music, spending time with her family and swimming! This new journey we find ourselves in is something we could have never prepared for. I never knew what true strength and fight looked like until I met Olivia. We watch as she literally fights her body every single day, and as gut wrenching and exhausting as it is, she is always able to radiate happiness.
Although it is a big part of her, we like to remind Olivia that having Rett Syndrome is not what makes her special. Her ability to light up an entire room, with love and joy, without ever having to speak a word, is what makes her remarkable.