The story of Angelique
“Imagine having skin as fragile as paper”.
“One of the most frustrating things for me is the itching. It’s like my whole body is on fire and I have ants crawling all over me. It’s so overwhelming.” – Maëlle.
Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. As a result, skin trying to repair the wound can cause unimaginable itching. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.